How is this program different than trying traditional Biofeedback?
This program is extremely unique in that it is tailored for patients with POTS and other forms of Dysautonomia. Based on Dr. Kyprianou’s experience as Director of Psychophysiology at the Heartbeat Clinic with POTS and Dysautonomia patients, she was able to create a program for the needs of these patients. The focus of this program is on medical necessity and physical symptoms and not solely mental health problems. It is also important to note that biofeedback is just one of the many components that make up The POTS and Dysautonomia Treatment Program.
How is this treatment program going to be different from all the others I have tried?
This treatment program is different in that we address all of your symptoms, not just one or two. We are able to address all of your symptoms because we correct and regulate the root of the problem, the autonomic nervous system (ANS). The patient trains with the equipment in every session to regulate their ANS. Once your ANS is regulated, you will start to see improvements in all of your symptoms.
Am I going to have to educate the doctor there about my own condition?
No. At your first appointment, she will take time to teach you about your body and the autonomic nervous system, and how and why you are experiencing so many symptoms. It can be extremely frustrating to have to educate your own doctor about this condition. Here at the POTS and Dysautonomia Treatment Center you can be comforted in knowing you are in a clinic where we help patients just like you every single day. Our entire staff has had experience with hundreds of patients with POTS.
What will I do each time I come in? How long is each session?
Sessions are approximately 2-3 hours long. Each time you will have sensors placed on various parts of your body, and you will train with the equipment. All of the procedures are non-invasive; you will not experience any pain or side effects. Everything in the center is designed to promote comfort and well-being. You will also meet with Dr. Kyprianou and other doctors and therapists in the office. We will constantly be monitoring your progress and implementing needed protocols just for you. There is also a counselor and a psychologist on staff if needed.
Do you do the same treatment for every patient?
Not all of us have the exact same symptoms and lifestyles. We address the root of the problem. We do that with every single patient. However, we tailor each treatment plan to the individual patient. Dr. Kyprianou and the staff get to know the patient extremely well and teach techniques and administer unique protocols developed for each patient’s needs, symptoms, and lifestyle. We help each patient get their life back.
I am a parent and want to bring my child to the POTS and Dysautonomia Treatment Center, do I get to be involved with treatment?
Yes, you will be a part of your child’s treatment. You will be in the room for your child’s initial consultation/evaluation and first training session. We will teach you about all the equipment and the process of the treatment program. Thereafter, your child will be in the treatment rooms for training by themselves. As your child progresses and makes gains throughout the program, we will have you come in and explain their progress to you. You will be a vital part in letting us know of changes you observe throughout the day.
What results are patients seeing with this program?
The majority of our patients see vast improvements and report significant results with their symptoms. It is important that patients continue with Phase 2, the home treatment plan, which includes daily training with portable equipment. If a patient is not dedicated and disciplined with their training, they will not see improvements. The good news is, home training is easy.
When do patient’s usually start seeing improvements in their symptoms?
All patients are different. Some patients start to see improvements in their symptoms during the 2-week accelerated program, and some start to see improvements during Phase 2, after coming home and training with the Home Program equipment in their normal environment.
Do I need a referral from a physician to make an appointment? Do you need medical records?
Yes, you do need a referral to make an appointment. You can bring your medical records at the time of your first appointment or fax them to us. We can also request them from your doctors. We only need records and diagnostic testing relevant to your POTS.
How do I make an appointment? Is there anything I need to know before making an appointment?
To make an appointment, call to speak with our office manager, at 1-888-352-8066. Our schedule is usually pretty flexible because we have multiple treatment rooms, so we should be able to accommodate your schedule. For the out-of-town patients scheduling the two week program there is a $1000 deposit to hold your spot that will go towards the cost of treatment. This deposit is 100% refundable if you cancel your appointment 4 weeks before your first appointment.
Do I need to be off all my medication to start treatment? Will your program allow me to wean off my medication eventually?
We ask that you continue your physician’s orders and proceed with all prescribed medication during treatment. The ultimate goal of our program is that you are able to be off your medications and function normally again. It is important that you work with the physician who prescribed your medications to slowly wean you off after you begin to see major improvements in your symptoms.